confusion playing across his faceâhe seems to be trying to place me.
âI donât know you,â he says. âAre you an angel?â
âNo,â I answer, a little shocked that we are actually talking.
âDad, itâs me,â I say, realizing that these are the first words heâs ever heard me speak.
âOh my baby,â Dad whispers, and begins to weep. âOh baby boy, youâre gone. Oh God, Iâm so sorry youâre gone.â
âDad, itâs okay. Iâm okay.â
âOh God, Shawn, youâre gone.â
I interrupt, speaking firmly, âDad, Iâm right here, I love you, I need you to knowââ
Ignoring me, Dad interrupts. âIâm so sorry I lost you, baby, Iâm so sorry I had to let you go. You were my baby, my baby boy, and I said good-bye, I left you and I lost you.â Dad sobs.
âDad, itâs all right,â I insist, trying to interrupt; I want to comfort him.
Dad says, âYouâre gone, you became an angel because I let you go. Double-jointed thumbs, just you and me. I had to let go....â His tears choke off the rest of his words.
I begin to cry too. âDad, Daddy ⦠I ⦠I canât.â Iâm crying too hard to speak.
âIâm so sorry, baby boy,â Dad says, his voice trembling, slicing into me like a scalpel carving an aching loss.
âYouâre an angel, baby boy. The angels came and loved you away because I let you go.
âGood-bye, son,â he says softly. âGood-bye, baby boy. Go be an angel.â
âI love you, Dad,â I say, and in the instant before the dream ends, I add desperately, âI donât want to die!â
15
Inside me this moment changes
into something never felt before;
a flutter of feathers as two birds, falling,
pass down through a blind, silent prayer,
whispering good-bye to dreams and hope,
pass down, falling, and whispering good-bye .
I tâs Saturday morning. Surrounded by sleeping bags, coolers, suitcases, cosmetics kits, groceries, noise, laughter, and the high-pitched chatter of female voices, Cindy, her friends, and Mom are doing the last-minute preparations for their trip to Spokane. Go, Spartans!
After what seems like hours the van is finally packed. Mom stops to give me a kiss on the forehead as she moves toward the door. But before her lips can even pucker up, Cindy, laughing, pulls her away. And suddenly theyâre gone. In a burst of energy and collective chaos, theyâre out the door.
Vonda, my respite care provider, is nice. As near as I can tell, ârespite care providerâ is a fancy name for baby-sitter. Sheâs taken care of me before. Sheâs a little impatient at my feeding times, and Iâm sure when she has to change my diapers, she comes up with lots of better ideas for making six bucks an hour. But most of the day she watches TV, chats on the phone, and reads Good Housekeeping or Glamour, which she has brought along with her. She doesnât give me much attention, but then nobody else does either.
Today sheâs happy. Sheâs working on her nails, glopping on deep-purple polish, followed by a sprinkling of gold glitter. Sheâs at least, league minimum, fifty pounds overweight, but her nails and her hair are perfect. I like her. Later tonight sheâll feed me, then give me my meds. Sheâll put me in my pajamas, making sure Iâm dry and clean; then sheâll put me to bed.
The day goes by so fast. Each hour seems like a minute. Whenever I manage to focus on the digital clock on the microwave in the kitchen, Iâm shocked by how much time has passed.
Itâs already early afternoon by the time I have my first seizure.
Outside of my body I decide to take a little tour of Seattle: Pike Place Market, the Seattle Art Museum, Pioneer Square, the waterfront with its cheesy piers and stench of fishy salt water.
I take this seizure slowly. I consider
Chris Hutchins, Peter Thompson